Tuberous Sclerosis Complex
Tuberous Sclerosis Complex is indexed under Rare / Orphan Chronic, Neurocutaneous Syndromes. Also known as TSC.
- US prevalence
- Estimated worldwide frequency ~1 in 6,000-10,000 people; no U.S.-specific national count identified Source: NIH MedlinePlus Genetics — Tuberous sclerosis complex. This figure comes from a professional society, registry, or study rather than a federal source. Label: REPORTED.
- ICD-10-CM codes
- Q85.1
- Typical onset
- Diagnosed in infancy/childhood; lifelong
- Course
- lifelong
- Body systems
- neurological, renal, pulmonary, dermatologic
- Sex differences
- Equal (autosomal dominant)
- Racial and ethnic differences
- Pan-ethnic
What this page does not establish
These figures describe populations, not individuals, and none of them is a diagnosis or a treatment recommendation. Prevalence estimates are approximate and reflect published ranges. Disparity figures are reported patterns, not causes.
Taxonomy last reviewed 2026-05-19. Each figure on the interactive page carries its own source and retrieval date, which can be later than this review.
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