Pediatric Refractory Epilepsy Syndromes

Pediatric Refractory Epilepsy Syndromes is indexed under Pediatric-Onset Chronic, Neurological. Also known as Dravet syndrome, Lennox-Gastaut syndrome, LGS, West syndrome.

US prevalence

Dravet: ~1 in 15,700; LGS: ~1-2% of childhood epilepsies Source: Dravet Syndrome Foundation; LGS Foundation. This figure comes from a professional society, registry, or study rather than a federal source. Label: REPORTED.

ICD-10-CM codes

G40.4, G40.81, G40.82

Typical onset

Dravet: <1 year; LGS: 3-5 years

Course

lifelong

Body systems

neurological

Sex differences

Dravet: slightly more males

Racial and ethnic differences

Pan-ethnic

What this page does not establish

These figures describe populations, not individuals, and none of them is a diagnosis or a treatment recommendation. Prevalence estimates are approximate and reflect published ranges. Disparity figures are reported patterns, not causes.

Taxonomy last reviewed 2026-05-19. Each figure on the interactive page carries its own source and retrieval date, which can be later than this review.

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