Ehlers-Danlos Syndromes

Ehlers-Danlos Syndromes is indexed under Musculoskeletal & Connective Tissue, Connective Tissue Disorders. Also known as EDS, hypermobile EDS, hEDS, classical EDS.

US prevalence
Estimated 1 in 2,500-5,000 (classical/vascular); hEDS may be much more common Source: Ehlers-Danlos Society; NIH. Cites federal and non-federal sources, and the record does not say which one gave this figure. Label: REPORTED.
ICD-10-CM codes
Q79.6
Typical onset
Lifelong; symptoms often worsen in teens/young adults
Course
lifelong
Body systems
musculoskeletal, dermatologic, cardiovascular
Sex differences
hEDS more diagnosed in women; vascular EDS equal
Racial and ethnic differences
Limited data

What this page does not establish

These figures describe populations, not individuals, and none of them is a diagnosis or a treatment recommendation. Prevalence estimates are approximate and reflect published ranges. Disparity figures are reported patterns, not causes.

Taxonomy last reviewed 2026-05-19. Each figure on the interactive page carries its own source and retrieval date, which can be later than this review.

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