Adult Congenital Heart Disease

Adult Congenital Heart Disease is indexed under Cardiovascular, Congenital / Structural. Also known as ACHD, grown-up congenital heart disease.

US prevalence

~1.4 million adults Source: AHA 2023; Circulation 2019. This figure comes from a professional society, registry, or study rather than a federal source. Label: REPORTED.

ICD-10-CM codes

Q20, Q21, Q22, Q23, Q24

Typical onset

Congenital; surviving to adulthood with improving surgical outcomes

Course

lifelong

Body systems

cardiovascular, pulmonary

Sex differences

Roughly equal

Racial and ethnic differences

Disparities in access to specialized ACHD care for rural and minority populations

What this page does not establish

These figures describe populations, not individuals, and none of them is a diagnosis or a treatment recommendation. Prevalence estimates are approximate and reflect published ranges. Disparity figures are reported patterns, not causes.

Taxonomy last reviewed 2026-05-19. Each figure on the interactive page carries its own source and retrieval date, which can be later than this review.

Browse all indexed conditions · Source registry · Methodology · Known limitations